We recently started implementing CPAP therapy with Zella, our four year old with ADNP syndrome. Although the following probably only appeals to an incredibly tiny segment of the population, I thought I would share some of the information we have gleaned in going down this road less traveled. Zella’s History with Obstructive Sleep Apnea Zella has mild to moderate obstructive sleep apnea. She was first diagnosed as a two year old after a particularly interesting (read: HEINOUS) sleep study. (Shoutout to Jake for suffering through that one.) Find more information about Zella and her ADNP syndrome diagnosis here. At this age Zella was averaging about 2 apnea events per hour of nighttime sleep. A sleep study one year later at age 3 further confirmed this diagnosis with similar ... [Read More]
toddler
Summertime in Augusta
Nothing says summer like hitting 101 degrees A few days in to an amazing #Steichler vacation with our long time friends, just when I thought our life was finally slowing down, we got the call that our oldest had booked another acting gig. We were shocked and excited...especially when we found that he would begin filming less than a week later. Fast forward a few days - I managed to get 4 sitters to cover our atrocious post-vacation schedule. These sitters are amazing. Literally could not do life without them. Cole is having an excellent time and has the privilege of working with yet another amazing cast and crew. He turned 10 on set and stated it was "better than any birthday party!" The Georgia film industry has provided him with so many wonderful opportunities that he ... [Read More]
