ADNP syndrome has stolen so much from our girl. At nearly 4.5 years old although she can chug along slowly with a walker, Zella is still unable to walk independently. She has a handful of approximations and signs, but we fear she may never utter a single word. Zella still can not scoop food onto a spoon to feed herself. She is not and may never be potty trained.
Fatigue overwhelms her body.
Frustration overcomes her mind.
Milestones are never met on time, or at all…
Despite our initial assumption that she would never swim without a flotation device, Zella is defying us all and swimming independently at 4 years old. (My apologies for the toplessness…this is how we roll in the backyard).
We could not be more thrilled with Zella’s progress in the pool. Jake and I would like to thank all of our physical, aqua, occupational, speech, and ABA therapists for allowing Zella to get to this point in her development. Without you this would not be possible.
And we would like to especially thank Barbara Lacombe and the Jones Creek Sharks swim team for accepting Zella with open arms. You are amazing.