I have taken everything in my life for granted…faith, parents, husband, kids, family, upbringing, home, health, safety…until now. It is only now, thirty years into my life, that I am painfully aware of what so many in this world have known for years, or perhaps for a lifetime – we are not promised a life of gumdrops and roses. Many of us are blessed beyond measure, but life’s trials always come.
I am lucky to know many brave and courageous friends who have walked this road long before me…with so much grace and dignity. I have witnessed a gorgeous little boy, Henry, “embrace the bif” and defy the odds over and over and over again with each setback, every emergency surgery, and countless specialist appointments. And I have seen his mother, Erin, walk this road beside him…never once wavering in her faith. Where
many most would fall apart, she looks to the only one who carries us when we can not go on.
Our little girl may never measure up to the world’s standards when it comes to physical perfection, but Zella’s life has a far greater purpose.
I have so much to learn from her.
Click here to read more about Zella’s diagnosis and living with ADNP syndrome.
Nicole Dufendach says
Oh Amanda, we will be praying for you guys and your sweet baby girl.